Living with Lyme Disease

Living with Lyme Disease

I wake up; sweating, panicked, dizzy, unable to slow my breathing down. I push on my husband and tell him to call 911, that I must be having a heart attack. He gets me a bottle of water, rubs my back and tells me to take deep breaths and try to concentrate on my breathing.

“It’s just another Herx,” he says.

After an hour of back rubbing, controlled breathing and relaxation techniques, my exhausted body falls asleep. I wake up the next morning feeling defeated; exhaustion like I’ve never felt before, sore muscles, palpitating heart but as they say, “the show must go on.”

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Integrity and the Truth Always Prevail – Our Stories of Strength EDS Anthology Final Status Update

Integrity and the Truth Always Prevail – Our Stories of Strength EDS Anthology Final Status Update

***Original post shared publicly February 24th, 2016 via Facebook, along with pictures and business documents supporting the truth.*** “For those of my friends and family who liked my previous Our Stories of Strength page or the two other Facebook pages associated with the EDS anthology that was published, I’ve not been involved in any of the three pages since early September. Despite owning the LLC (and pay 99% of all business...

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The Priceless Benefits of Obtaining Proper Legal Counsel – Our Stories of Strength EDS Anthology Availability & Business Status Update #2

The Priceless Benefits of Obtaining Proper Legal Counsel – Our Stories of Strength EDS Anthology Availability & Business Status Update #2

***Post originally shared publicly on December 17th, 2015 via Facebook by Kendra Neilsen Myles*** “Because I have many friends & family who wonderfully support me in all that I do, I’m sharing the statement that I posted almost two months ago again. There’s something that may not have been quite clear to those who aren’t familiar with using social media for business — I’m in no way associated with, nor...

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Business Legal and PR Statement Concerning the Current and Future Availability of ‘Our Stories of Strength – Living with Ehlers-Danlos Syndrome’ and Other Critical Business & Community-related Updates

Business Legal and PR Statement Concerning the Current and Future Availability of ‘Our Stories of Strength – Living with Ehlers-Danlos Syndrome’ and Other Critical Business & Community-related Updates

***Original business legal & PR statement shared October 27th, 2015 via Facebook by Kendra Neilsen Myles concerning the current & future availability of ‘Our Stories of Strength – Living with Ehlers-Danlos syndrome,’ and other critical business & community-related updates.*** “I was deeply disappointed and saddened to read the public post on the Our Stories of Strength page, appearing on October 26, 2015. I...

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