Genetic Conditions
Charcot-Marie-Tooth Disease
Charcot-Marie-Tooth disease (CMT) is one of the most common inherited nerve disorders. CMT affects an estimated 2.6 million people worldwide, although experts believe the number could be much higher. For many affected, quality of life is challenged by the pain and functional difficulties. We have witnessed many overcome the challenges to embrace life with grace, dignity, and a strength like none other. We want to share your stories. Release TBA
Cystic Fibrosis
Cystic Fibrosis is a genetic condition that is most commonly known for the pulmonary involvement, but it also affects the liver, pancreas, kidneys, and the intestines. The symptoms are varied between people affected by the condition, but at the heart of each person is strength, determination, and perseverance. Release TBA
Down Syndrome
Down Syndrome is noted to be one of the most common chromosome abnormalities at a rate of approximately 1/1000. While the condition carries common facial characteristics, it comes with something else – Heart! There is something magical about the world when in the presence of a person living with this condition and we want to capture your stories of love, humor, and joy. Release TBA
Ehlers-Danlos Syndrome II
With the release of Our Stories of Strength™ – Living with Ehlers-Danlos Syndrome, we have had many more submissions come in as well as people asking if we would do a second anthology. We are elated to accept more stories from great people living with EDS until we have enough for a second anthology. Release TBA
Marfan Syndrome
Do you or someone you love live with Marfan Syndrome? As a genetic connective tissue disorder, the effects can be widespread and for many, not recognized until adulthood. We want to hear how you live with passion and purpose to inspire others within the community to do the same. Release TBA